Hiya I am Elliot

 

I am 15 months old and not very well!! I have a mitochondria disorder, which means my muscles aren’t getting enough energy so I can’t do things other kids my age do.  I had special pictures taken of my brain by a massive camera (MRI scan). 

The pictures showed I have something called Leigh’s disease! What’s that you ask?? Well it’s a very rare disease which has damaged my brain stem which is getting progressively worse. Although my consultant has told us there is no cure for my Disease, all my family and friends are doing lots of things to raise money for research into Leigh’s disease.

A charity named C.L.I.M.B (Children Living with Inherited Metabolic Diseases) are involved also and are helping lots.  My family are speaking to doctors in America to see if we can go there and get some treatment to prolong my life. 

People say time is precious, more so to me & my mum & dad, life expectancy for children like me is statistically 6-7 years old if I am lucky.  So could you please help by donating anything no matter how big or small to help with our fundraising as quickly as possible.

 

THANK YOU            

 

Elliot & Family x